NEWS

NEWS

We're here to support families of Duchenne muscular dystrophy.
07 Apr, 2023
Nebraska man joins fight against Duchenne muscular dystrophy
29 Mar, 2023
Will you accept this challenge Millstone Twp. & Upper Freehold Regional School Districts? 
21 Feb, 2023
-- Study meets primary endpoint with secondary and exploratory endpoints showing consistency with primary endpoint -- -- Data reinforces previously observed safety profile for Givinostat; treatment in boys with DMD continues to show a good tolerability profile -- -- The company is planning to discuss the potential for marketing application submission with regulatory authorities for Givinostat in DMD -- -- Results were presented at the Annual PPMD Conference on June 25, 2022 -- 
24 Jan, 2023
Hypoxia as a Modulator of Cardiac Disease in Duchenne muscular dystrophy by Dr. DeWayne Townsend Jamesy is one of the first children with Duchenne muscular dystrophy to undergo HBOT treatment. Through this study, his marked improvements have led to the first ever hyperbaric pre-clinical trial to be hosted by the University of Minnesota. The launch of the HBOT research is a primary focus of our current fundraising efforts. The findings may provide the vital information needed to prove the clinical efficacy of oxygen therapy, and could lay the groundwork to make this treatment available to all children suffering from Duchenne. The goal of the HBOT study is to enable these children to walk for as long as possible, until a cure can be found.
24 Jan, 2023
Equal justice for Charities: allow Charities to sell raffles tickets on-line in NJ 
24 Jan, 2023
Joe Ippolito (our Treasurer) and I will be taking a 260-mile “walk” next month. A “Walk For Their Lives,” to be exact, from Washington, D.C. to Old Bridge, to raise awareness of Duchenne Muscular Dystrophy. Yes, you heard me right – from D.C. to NJ. By now, you know that kids with Duchenne are in wheelchairs by their early-teens. Breathing through ventilators by their late-teens. And that there is no cure. But we want the rest of the world to know, too. So Joe and I will be driving to Washington with our families, and they’ll drive back home while we “Walk For Their Lives.” We will start on Columbus Day, Oct. 12. We’ll be walking 33-35 miles a day and camping out each night. On the night of Sunday, Oct. 18, we’ll be camping out at Sportika in Manalapan Township. And the next day, we will walk the last 26.2 miles (the length of a marathon). We will stop at the last sponsored checkpoint at All American Ford Old Bridge. Then it is on to the finish line at Lombardi Field in Old Bridge (near Old Bridge High School), where Mayor Owen Henry and Congressman Chris Smith will greet us. And we would love for you to join us! Please feel free to join us anywhere along the route, and to leave anywhere (although you are invited to the Finish Line for the ceremonies!) Our “Walk For Their Lives” will be sponsored by All American Ford in Old Bridge, and we’ll wind through Maryland and Pennsylvania before New Jersey. Our goal is to raise $50,000+ toward a cure for Duchenne Muscular Dystrophy…so that no parent will ever again have to hear the news that Karen and I heard seven years ago. Please join us! It will be a joy to see our friends and neighbors as we head toward the finish! For the latest updates, please follow our Facebook group, D.C. to All American Ford – Team Jamesy 24/7 . To donate or to become a fundraiser, please visit the Donation Page . -Jim Raffone
24 Jan, 2023
It’s not easy to get a little Irish boy with a fatal illness to the United States for medical treatment, especially during COVID-19. But JAR of Hope has done it.  Alfie Pentony, 7, lives in Northern Ireland with his parents, Colleen and Jamie, and two brothers, according to a press release from JAR of Hope.
24 Jan, 2023
JAR of Hope and All American Ford are raffling off a brand new Mustang convertible to help fund a cure for Duchenne Muscular Dystrophy
24 Jan, 2023
Dave is a business and technology strategist for the pharmaceutical and healthcare industry. With a heritage in healthcare marketing, communications, and technology, David has worked with pharmaceutical companies, the medical profession, research organizations and patient groups for over 20 years, completing various types of marketing and strategy projects across almost all disease areas. David founded healtheo360 in 2013 after his sister-in-law was diagnosed with stage IV breast cancer and his mother with Alzheimer’s disease. After unsuccessful efforts with other support groups, due in part to the widening age gap between members of these groups, the family was forced to search for other outlets of social support. In response, healtheo360 was started. Visit them here. 
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