Duchenne is a devastating muscle disease in children. Most boys who have it do not survive beyond their mid-twenties and those that do are wheelchair bound by age 12. Duchenne affects about 300,000 boys worldwide; 20,000 kids in the US. There is no cure… NOT YET. Our Mission for the JAR of Hope is dedicated to bringing awareness and raising funds directed to find a cure and provide funding for treatment and medical needs. Our HOPE is to be able to end Duchenne.
Our Inspiration – James Anthony Raffone
James Anthony Raffone is 4 years old. He was diagnosed with Duchenne Muscular Dystrophy on September 13, 2013. There is no cure. He is a gift. Without a cure, he will live with Duchenne for less than 25 years.
Until we find a cure, we will watch him slowly lose his leg muscles and become dependent on a wheelchair. Without a cure, we will watch him eventually lose control of his breathing and need a ventilator. Eventually it will affect is heart muscle. Without a cure this child, a son, a brother, a childhood friend, a nephew, a grandson, and a precious little boy who touched so many of us will die. The only way this beats him is if we fail him.
Thanks to Sky Blue FC For Your Support!
Strength in Numbers!
On this historic day (8/23/15), hundreds came out to learn about Duchenne Muscular Dystrophy. It was a memorable day in the Manalapan community.
GYMS PARTICIPATION WANTED CAMPAIGN: 10 PUSHUPS FOR $10 QUEST: 79 GYMS IN 79 WEEKS MISSION: TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY We are visiting a new gym each week kicking off the campaign ...
St. Charles, on Staten Island, NY located in New Dorp have invited JAR of Hope and Teamjamesy to be a part of this years Pep Rally.They want to host a Push-up event to help the Raffones, former ...
Steven, The Manager of the pizzeria heard of the story of JAR of Hope and it's mission and wanted to support our efforts anyway he could. On a Sunday morning before the restaurant opened all of the ...
Who ever said freshman do not have a voice? Well, whoever said that didnt know Rob Caracappa. This loan freshman had the courage to stand up and speak up about a little boy in his community and people ...
On August 1st, 2015 Hybrid CrossFit invited JAR of Hope down to their new facility to participate in our Push-up Campaign. They had over 60 athletes participating in our campaign that has lead to ...
JAR Of Hope Has Raised
HOW YOU CAN HELP!
Every donation, no matter how large or small, helps us get one step closer to curing Duchenne.
Join our fundraising committee and help brainstorm, and organize, future fundraisers.
From marathons to pushups, there’s many fundraising activities you can participate in.