Duchenne is a devastating muscle disease in children. Most boys who have it do not survive beyond their mid-twenties and those that do are wheelchair bound by age 12. Duchenne affects about 300,000 boys worldwide; 20,000 kids in the US. There is no cure… NOT YET. Our Mission for the JAR of Hope is dedicated to bringing awareness and raising funds directed to find a cure and provide funding for treatment and medical needs. Our HOPE is to be able to end Duchenne.
Our Inspiration – James Anthony Raffone
James Anthony Raffone is 4 years old. He was diagnosed with Duchenne Muscular Dystrophy on September 13, 2013. There is no cure. He is a gift. Without a cure, he will live with Duchenne for less than 25 years.
Until we find a cure, we will watch him slowly lose his leg muscles and become dependent on a wheelchair. Without a cure, we will watch him eventually lose control of his breathing and need a ventilator. Eventually it will affect is heart muscle. Without a cure this child, a son, a brother, a childhood friend, a nephew, a grandson, and a precious little boy who touched so many of us will die. The only way this beats him is if we fail him.
Thanks to Sky Blue FC For Your Support!
Strength in Numbers!
On this historic day (8/23/15), hundreds came out to learn about Duchenne Muscular Dystrophy. It was a memorable day in the Manalapan community.
GYMS PARTICIPATION WANTED CAMPAIGN: 10 PUSHUPS FOR $10 QUEST: 79 GYMS IN 79 WEEKS MISSION: TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY We are visiting a new gym each week kicking off the campaign ...
On this day, I was invited by Coach Mark Henry to Nick Catone's MMA training facility. I was surprised by what I witnessed. There was a gym fill with gifted athletes waiting for my arrival,( on site was: ...
JAR of Hope was asked to come down to CKO of Jackson, NJ to help support a little boy Harry Smith. Harry is suffering from Emery-Dreyfus Muscular Dystrophy. His parents received his diagnosis just 3 ...
H.I.T Factory will be hosting JAR of Hope's Push Up Campaign. Feel free to bring a guest with you to make history this night. We will be closing out 2015 with our friends in the Brooklyn ...
JAR Of Hope Has Raised
HOW YOU CAN HELP!
Every donation, no matter how large or small, helps us get one step closer to curing Duchenne.
Join our fundraising committee and help brainstorm, and organize, future fundraisers.
From marathons to pushups, there’s many fundraising activities you can participate in.