Duchenne is a devastating muscle disease in children. Most boys who have it do not survive beyond their mid-twenties and those that do are wheelchair bound by age 12. Duchenne affects about 300,000 boys worldwide; 20,000 kids in the US. There is no cure… NOT YET. Our Mission for the JAR of Hope is dedicated to bringing awareness and raising funds directed to find a cure and provide funding for treatment and medical needs. Our HOPE is to be able to end Duchenne.
Our Inspiration – James Anthony Raffone
James Anthony Raffone is 4 years old. He was diagnosed with Duchenne Muscular Dystrophy on September 13, 2013. There is no cure. He is a gift. Without a cure, he will live with Duchenne for less than 25 years.
Until we find a cure, we will watch him slowly lose his leg muscles and become dependent on a wheelchair. Without a cure, we will watch him eventually lose control of his breathing and need a ventilator. Eventually it will affect is heart muscle. Without a cure this child, a son, a brother, a childhood friend, a nephew, a grandson, and a precious little boy who touched so many of us will die. The only way this beats him is if we fail him.
Thanks to Sky Blue FC For Your Support!
GYMS PARTICIPATION WANTED CAMPAIGN: 10 PUSHUPS FOR $10 QUEST: 79 GYMS IN 79 WEEKS MISSION: TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY We are visiting a new gym each week kicking off the campaign ...
Once again Charles hope will have a contingent of runners participating under the team jamesy jar of Hope banner to bring awareness to this dreaded disease. This year our team will be bigger and more ...
This will be JAR of Hope's first annual dinner dance gala. This black tie affair will be held to raise awareness and funds to help all those children suffering from this terminal illness. There will be ...VIEW MORE UPCOMING EVENTS
JAR Of Hope Has Raised
HOW YOU CAN HELP!
Every donation, no matter how large or small, helps us get one step closer to curing Duchenne.
Join our fundraising committee and help brainstorm, and organize, future fundraisers.
From marathons to pushups, there’s many fundraising activities you can participate in.