Rare Disease Report
James Raffone, Founder and CEO of JAR of Hope is using muscle-dependent activities – sports such as running and MMA fighting – to raise awareness...
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New Jersey Father Raising Funds, Awareness For Son’s Illness One Push-Up At A Time
A central New Jersey father is doing everything he can to bring awareness to the debilitating disease his son is battling.
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Manalapan Family Raising Funds To Battle Rare ‘Duchenne Muscular Dystrophy’
A young boy battling a rare disease may have found some hope in an experimental treatment.
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A big push, literally, to help Manalapan 6-year-old
The movement to help James “Jamesy” Raffone started with a single, simple act. A push-up. In telling his daughters about the rare disease afflicting...
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N.J. dad flexes muscle for son Jamesy Raffone, as 6-year-old fights rare Duchenne Muscular Dystrophy
Jamesy, a 6-year-old who loves Minions and Legos, has a rare, fatal disease that usually kills by the age of 25. His dad, James Raffone, 44, is incapable of idly...