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DMD in Sports

AN INTIMATE LOOK AT CHILDREN WITH RARE DISEASES

By JOHN J. BURO

OLD BRIDGE -The concept was borne from the 1969 death of a brother who was afflicted with Tay-Sachs Disease -a rare genetic disorder that destroys nerves in the brain and spinal cord- and was furthered when a best friend gave...

PUSHING FORWARD

“We have not cured Duchenne Muscular Dystrophy…yet. But, because of you, we are one step closer.” -Jim Raffone, to the students of Old Bridge High School, December 19, 2017

By JOHN J. BURO

OLD BRIDGE -For one day during the start...

CURE FOR DUCHENNE STILL ON LIFE SUPPORT

By JOHN J. BURO

MANALAPAN – In the end, it will be about money and science – the two requirements needed for every successful cure ever discovered. There’s no doubt that’s how one such saga, now in its fourth year, will play out.

One...

The Run Of His Life

By JOHN J. BURO

MARLBORO -Earlier this year, Spencer Freedman weighed in at a robust 337 pounds and wasn’t feeling particularly good about himself.

Freedman, 35, was well aware of his family’s history -well aware of the cancer that...