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Scrap Duchenne

Ok the wait is over!

We have finally solidified a place and date for our crop!

This year Scrap Duchenne will be on April 6 2019 and it will be at College of Staten Island 2800 Victory Blvd, Staten Island NY 10314 Main Gymnasium.  I hope...

Last Man Standing

Are You Teamjamesy worthy? Can You Make The Cut? Come Find Out! Jim Raffone presents: The Last Man Standing!

I have been described as an inspiration, great father, even crazy but I know I am Relentless:(adj:  Someone who is relentless, someone who...

Save Our Sons

A tough 300km walk around the Bay of Melbourne to help raise awareness and funding for Duchenne muscular dystrophy.  Sponsored by Save Our Sons Duchenne Foundation of Australia.

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Reaching the Finish Line for Duchenne Muscular Dystrophy: An Update on the Grand to Grand Ultra

The surroundings were familiar, and the terrain—similar, but more intense than previous years. The mission was simple—finish the race. The motivation was greater than any physical adversity—bring awareness to a devastating disease that robs the...