JAR of Hope's mission is dedicated to bringing awareness and raising funds directed to ongoing research in the hope of eliminating Duchenne Muscular Dystrophy.
What is DMD?
Duchenne Muscular Dystrophy (DMD) affects about 300,000 boys worldwide, with approximately 20,000 cases in the United States.
DMD is a form of muscular dystrophy that is caused by a mutation of the dystrophin gene—located on the X chromosome—which codes for the protein dystrophin. The absence of dystrophin in the body causes muscles to deteriorate and break down. DMD is the most frequently occurring and one of the most rapidly progressive childhood neuromuscular disorders. Due to the way DMD is inherited, boys are primarily affected.
In Duchenne Muscular Dystrophy, the child’s exons (sections of DNA that code for the protein dystrophin) are deleted, duplicated, or cause an abrupt stop in the protein production process. The impaired exons then interfere with the rest of the gene being pieced together, which results in a mutation that causes the body to lack the protein needed to protect and rebuild muscle fibers. This leads to continuous muscle degeneration and premature death. Read more about DMD on duchenne,com
DMD has many variations, which makes finding a cure extremely challenging. JAR of Hope's mission is dedicated to bringing awareness and raising funds directed to finding a cure.
BOARD OF DIRECTORS
Laurie is the founder of Media News Blast – www.medianewsblast.com. Laurie has been awarded the Moms Choice Award for outstanding Public Relations support. Laurie makes regular appearances on Fox and Friends national as a Consumer Lifestyle Expert and has also secured media placement on Good Morning America, Fox & Friends, Hallmark, The Doctors Show, Live with Kelly and Ryan, The View, The Today Show and more.
Tamer is an expert in the field of Resource Development with over 17 years of professional experience with multiple United Ways and his Alma Mater, King’s College. Tamer brings a passion of helping others through inspiring those around him to donate their time and their money to make a difference. Currently, Tamer is the Director Resource Development for United Way of Monmouth and Ocean Counties.
Dr. Carlo Rago, PhD
Dr. Rago studied at Johns Hopkins University and specializes in cellular and molecular medicine. He has been instrumental in his research efforts and collaborates with JAR of Hope and other foundations to identify the most viable biomedical research projects for Duchenne Muscular Dystrophy.
Dr. David B. Dornfeld, DO
Dr. Dornfeld is a New Jersey-based osteopathic physician who believes in focusing on the person who has a disease or condition, rather than treating the disease the person has. He utilizes hyperbaric oxygen therapies, intravenous nutritional support, natural thyroid and hormone replacement therapies and osteopathic manipulative therapies, among many other modalities to holistically help people achieve quality longevity.
Dr. Michael Hayward, PhD
Dr. Hayward has 25 years of experience in biomedical research with in vivo systems, and has evaluated phenotypes of over 100 different genetically modified mouse lines and dozens of pre-clinical test therapeutics. He has served as an invited speaker on the prediction of efficacy and toxicity on animal models, and has been interviewed for “Genetic Engineering & Biotechnology News” and the “MIT Technology Review.”
Dr. Antonio D’Esposito, DC
Dr. D’Esposito is a Staten Island, NY-based chiropractor responsible for administering the ongoing ultrasound treatment to Jamesy. The treatment has resulted in alleviating many of the muscle spasms Jamesy suffers from and has improved his overall motor function by 60 percent.
After learning about JAR of Hope and Duchenne Muscular Dystrophy from a post on a friend’s Facebook page, Heather wanted to do more to help raise funds and awareness in her own area. She reached out to JAR of Hope and requested information on how to become more actively involved. With her drive, dedication and desire to pay it forward and assist others, Heather hopes to spread awareness of DMD to not only Utah but surrounding states as well.